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Welcome to the message board. Please read the Message Board Terms of Use before participating. We hope you will share your experiences with NES as well as your thoughts and questions. Because information about NES and how to treat them is not widely available, it is our hope that those with NES and their family members can provide much needed insights that all can benefit from. It is our hope that those researchers and physicians who are working on NES will see the information here and it will help them in their efforts. We invite them also to post helpful information.

 

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Nonepileptic Seizures Message Board Search  

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by Site Admin
   Notice from The Nonepileptic Seizure Organization

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Hello everyone. Just a quick note that we take your safety and privacy very seriously. We monitor this message board closely to keep it a very safe place to be. Only messages authored by "Site Admin" are by individuals who are officially connected ...

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by mjcandzack
At Wits End

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I wish I knew where to begin.  My wife of 20 years has suffered PNES for all 20 of those years plus some.  She experienced sexual abuse in high school, and, as I understand, has had the seizures ever since.  Back 20 years ago, we ...

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by ss1980
First Seizure...Keppra?

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I recently had my first (I guess it was my first) grand mal siezure at home few days ago.  My wife was there and called 911.  I had a CAT scan and an MRI which both came back fine.  My EEG is scheduled for later this month.  The ...

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by caz22
I cant stand these any more

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 Hi i am new to this site my daughther aged 9 has been having nes since the end of Jan 08.It was really good to find this site to read other peoples expeirences and know you are not alone.We have good and bad days some days she can seizures from ...

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by drewmo
My NES was caused by AEDs!

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When I was 25 I was diagnosed as having Temporal Lobe Epilepsy (TLE) as the cause of really scary night time disturbances I was getting. Over the years, on and off, I took medication, as the doctors were concerned I might some day have a day tme seizure. ...

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by Shine35
First Timer

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 I recently experienced my first seizure, I had a Grand Mal Seizure and it lasted for 6-7 minutes, which is pretty long from what I hear. I will be going to see a neurologist in the next few weeks but my point of this thread is my confusion.  ...

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by lpgonzalez
The search has just begone!

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For the last 7 years I have seen so many doctors. Been given so many diagnosis and taken so many medication. Last week I was told I have PNES. The neurologist told me this was very common. So common I CAN NOT find a doctor that knows what I am talking ...

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by abay1
So glad to find this site

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Hi, thank you for this site.

My partner has been recently diagnosed with NES and we both have felt very helpless about ways to treat these NES. The doctors have told us the treatment is through working with a pschologist. We found that even ...